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Yıl:2019; Cilt: 56; Sayı: 4>> Özet
TAM METİN
Nöropsikiyatri Arşivi; 2019;56(4):292-301
SUDEP Konuşalım
AD Elmalı, N Bebek, B Baykan
İstanbul Üniversitesi, İstanbul
Epilepsi hastalarında ani beklenmedik ölüm (sudden unexplained death in epilepsy: SUDEP), epilepsinin yıkıcı bir komplikasyonudur ve son derece açık önemine karşın, yakın geçmişte az oranda tanınmıştır. Bu gözden geçirme yazımızda, SUDEP tanımı irdelenmiş, altta yatan güncel patofizyolojik mekanizmalara dair teoriler incelenmiş, risk faktörleri ve önlemek için alınabilecek önlemler gözden geçirilmiştir. Sonunda da çok daha önemli olarak hastalar ile yakınlarına SUDEP riskinin nasıl bildirilmesi ve açıklanması gerektiğine dair öneriler paylaşılmıştır. Bu yazıda amacımız klinisyenlere; SUDEP’i tanıma, hasta ve yakınlarına mümkün olan en mantıklı ve duyarlı bir biçimde SUDEP riskini açıklama ve mümkün olabildiğince SUDEP’i önleme sorumluluklarında yardımcı olmaktır. Ölümcül sonuçları olan bu öncelikli konuda bilimsel bilgiyi arttırmak ve farkındalık yaratmak adına gelecekte yeni araştırmalara kesinlikle gereksinim duyulmaktadır.
Let’s talk SUDEP
Sudden unexplained death in epilepsy (SUDEP) is a devastating complication of epilepsy which was under-recognized in the recent past despite its clear importance. In this review, we examine the definition of SUDEP, revise current pathophysiological theories, discuss risk factors and preventative measures, disclose tools for appraising the SUDEP risk, and last but not least dwell upon announcing and explaining the SUDEP risk to the patients and their caretakers. We aim to aid the clinicians in their responsibility of knowing SUDEP, explaining the SUDEP risk to their patients in a reasonable and sensible way and whenever possible, preventing SUDEP. Future studies are definitely needed to increase scientific knowledge and awareness related to this prioritized topic with malign consequences.

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